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We are rare disease patients, caregivers, researchers, and practitioners who share the same sense of urgency and values about access to resources and research for rare disease patients and their families. Our translational care model can improve the lives of patients with rare diseases in as little as 18 months to 3 years, creating hope along the way and ultimately impacting how rare conditions are managed. Rdf was launched by rare disease patients, caregivers, researchers, and practitioners who shared the same sense of urgency and values about access to resources and research for rare disease patients and their families.
Rare disease foundation aims to promote strength, community and resilience through knowledge, resources and social support Supporting associations & partners bc children’s hospital foundation ubc rec (runvan event) Our peer 2 peer resource network community is comprised of groups across canada that host round table discussions, guest speakers and community events.
We request that publications containing data supported by microgrants acknowledge the support of the rare disease foundation and bc children’s hospital foundation.
The primary objectives of the foundation are to provide support services to individuals afflicted with rare diseases and their families, to advance education by funding research into rare diseases that is made available to the public, and to gift funds to qualified donees.
